General information about SUDEP
SUDEP Aware's eBrochures, targeted to specific audiences
SUDEP Overview
Discusses current understanding with regards to SUDEP, August 2010, Epilepsy.com, USA
SUDEP FAQs
SUDEP questions and answers, March 2010, Epilepsy Foundation, USA
Sudden Unexpected Death in Epilepsy
Epidemiology; risk factors; pathophysiology of SUDEP; SUDEP and epilepsy surgery; and implications
for management. Ch 38, 'Benchside to Bedside, A Practical Guide to Epilepsy'. 12th ed (2009), FJ
Rugg-Gunn, ILAE (UK Chapter) & The National Society for Epilepsy, UK
A Preventable Cause of SUDEP Finally is Established
Epilepsy.com Spotlight Newsletter March 2010, Jeffrey Noebels MD PhD & Alica Goldman MD
PhD
How We Might Prevent Sudden Unexpected Death in Epilepsy
Epilepsy Review article - SUDEP Research, 2010, The National Society for Epilepsy, UK
What is Sudden Unexplained Death in Epilepsy?
General SUDEP information as at June 2009, Kimberly Berman BSc
Sudden Unexpected Death in Epilepsy - continuing the global
conversation
A collection of considered observations on the many issues surrounding SUDEP, by leading authors in the medical,
legal and professional fields, and real life stories from families bereaved by epilepsy - to provide a snapshot of our
understanding of SUDEP in 2011. Epilepsy Australia, Epilepsy Bereaved (UK) & SUDEP Aware (Canada)
Risks & SUDEP
SUDEP information report, Dec 2009, Epilepsy 360°, Epilepsy Action, Australia
Sudden Unexpected Death in Epilepsy (SUDEP)
SUDEP information leaflet, 2008, Brainwave The Irish Epilepsy Association & Epilepsy Bereaved, UK
Sudden Unexpected Death in Epilepsy (SUDEP)
General SUDEP information as at Mar 2009, Virtual Medical Centre, Australia
Sudden Unexpected Death in Epilepsy (SUDEP)
General SUDEP information as at Dec 2007, Epilepsy Action, UK
Sudden Unexpected Death in Epilepsy
General SUDEP information as at May 2006, eMedicine, USA
SUDEP (Sudden Unexpected Death in Epilepsy): A Review
General SUDEP information. Undated, Epilepsy Action, Australia
SUDEP - What is it & What are the Risks?
General SUDEP information. Undated, Epilepsy Bereaved, UK
Living with Epilepsy - Emotions and Feelings: Risks, Injuries and SUDEP
Here young people talk about their thoughts and concerns about living with epilepsy: the risks, injuries
and SUDEP. May 2008, Youthhealthtalk, UK
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SUDEP webinars, videos, podcasts and presentations
Webinar: "SUDEP - what you need to know."
By Dr. Lawrence Hirsch, Professor of Neurology, Yale University in New Haven @ Epilepsy Foundation
Connecticut (2011).
Webinar: "Explaining the unexplained; Expecting the unexpected: Where are we with Sudden Unexplained Death in Epilepsy?"
By Dr. Elizabeth Donner, Paediatric Neurologist, Hospital for Sick
Children in Toronto @ the University of Toronto's Centre for Forensic Science & Medicine (2011).
Presentation: "SUDEP: What is it, and who seems to be at risk?"By Dr. Elson So, Professor of Neurology, Mayo Clinic in Rochester @ the Epilepsy
& Society Symposium, Melbourne (2010).
Video: "SUDEP: Is it preventable?"By Dr. Elson So, Professor of Neurology, Mayo Clinic in Rochester @ the UC
San Diego Department of Neurosciences Grand Rounds (2010).
Webinar: "Marker for SUDEP."
By Jeffrey Noebels MD PhD, Baylor University in Waco @ the 2010 Epilepsy
Pipeline Update Conference, Epilepsy.com (2010).
Audio Podcast: "SUDEP"
By Elson So MD, Professor of Neurology, Mayo Clinic in Rochester @ the 2009 Hallway
Conversations, Epilepsy.com (2009).
Conference Call Presentation: "Sudden Unexpected Death in Epilepsy (SUDEP): An overview."By Maromi Nei MD & Kelly Caravetta MSN CRNP, Thomas Jefferson University
in Philadelphia @ TeleConsults in Epilepsy program, American Epilepsy Society (undated).
Epilepsy articles mentioning SUDEP
Epilepsy Across the Spectrum: Promoting Health and UnderstandingReport identifies public health actions for improving the lives of those with epilepsy. Institute
of Medicine (Mar 30, 2012). The Mortality of EpilepsyThe risks and who is at risk; causes of death, epilepsy-related deaths; AEDs and increased mortality. Ch
37, 'Benchside to Bedside, A Practical Guide to Epilepsy'. 12th ed (2009), A Neligan & GS Bell,
ILAE (UK Chapter) & The National Society for Epilepsy, UK
Pediatric Epilepsy in OntarioHansen I (2009), Technical Rescue, Issue 55, 26-31.
Please note that these links are provided
for convenience and information only and do not constitute an endorsement by SUDEP Aware.
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