Campaign materials & events

SUDEP eToolkit

The eToolkit is a set of documents designed to improve understanding of SUDEP and to facilitate its discussion among families, healthcare providers, death investigation professionals and researchers.

Created, primarily, as an electronic resource, to allow for immediate, wide-spread, cost effective distribution, we encourage its download for forward or printout and sharing in your home, office, hospital, epilepsy centre, school, library etc. Please join the campaign and distribute the link or downloads to as many places as you can! If you would like to add your organization's logo/details to these brochures, please contact us.

Developed with the help of campaign partners, including SUDEP experts, families, researchers and advisers, this eToolkit is a continuous work in progress that will evolve as more tools are created and shared by collaborators, and as new information about SUDEP is revealed. For this reason, and to ensure you have the most recent information available, we ask that you link to the eToolkit rather than download it to your site.

The first components of the eToolkit include a series of brochures that explain SUDEP and provide information to help address the questions and concerns specific to target audiences. These include parents of children, people with epilepsy, young adults, people bereaved by epilepsy and healthcare providers and will shortly also include members of the death investigation team.

Five brochures are now available for download, with all available in Spanish and four in French. If you would like to be notified of updates by email, please subscribe to the campaign newsletter.

eBrochures:
Available for printing in tri-fold or standard page format.

Photo: Brochure Cover_People With Epilepsy

SUDEP: Information for People with Epilepsy
- tri-fold
- standard page

SUDEP: Renseignements pour les Personnes ayant l'Épilepsie
- tri-fold
- standard page

SUDEP: Información para las Personas con Epilepsia
- tri-fold

SUDEP: Information for Parents & Caregivers of Children with Epilepsy
- tri-fold
- standard page

SUDEP: Renseignements pour les Parents et Fournisseurs de Soins ayant des Enfants atteints d'Épilepsie
- tri-fold
- standard page

SUDEP: Información para Padres y para Quienes Cuidan a los Niňos con Epilepsia
- tri-fold

Photo: Brochure Cover_Young Adults With Epilepsy

SUDEP: Information for Young Adults and Teens with Epilepsy
- tri-fold
- standard page
SUDEP: Renseignements pour les Jeunes Adultes et les Adolescents Atteints d’Épilepsie
- tri-fold
- standard page
SUDEP: Información para Adultos Jovenes y Adolescentes con Epilepsia
- tri-fold

Photo: Brochure Cover_People Bereaved by Epilepsy

SUDEP: Information for People Bereaved by Epilepsy
- tri-fold
- standard page

SUDEP: Renseignements pour les Personnes ayant Perdu un Proche Atteint d’Épilepsie
- tri-fold
- standard page
SUDEP: Información para las Personas en Duelo por la Epilepsia
- tri-fold

Photo: Brochure Cover_Healthcare Providers

SUDEP: Information for Healthcare Providers
- tri-fold
- standard page

SUDEP: Renseignements pour les Fournisseurs de Soins de Santé
- tri-fold
- standard page
SUDEP: Información para Proveedores de Cuidados de Salud
- tri-fold

Online book - "SUDEP: continuing the Global Conversation"

This downloadable publication, from an editorial partnership between Epilepsy Australia, Epilepsy Bereaved and SUDEP Aware, blends the stories of families whose lives have been heavily impacted by SUDEP with articles from leading SUDEP authors in the medical, legal and health professional fields from around the globe.

Hard copies are being distributed throughout North America by campaign partners and are still available, while stocks last, from SUDEP Aware, members of the Canadian Epilepsy Alliance or your local Epilepsy Foundation in the US.