SUDEP support

Support

SUDEP Aware understands how terribly alone SUDEP-bereaved families can feel in their plight for information and to find out what happened to their loved one.

Being thrown, without warning, into a world of police investigation, death procedure and the unknown takes a large toll on the grieving family. Please know that you are not alone and that there are others who have been through a similar experience and want to connect with you and help. You might like to read some of their SUDEP stories shared.

SUDEP Aware is contacted by people across Canada and the United States and we can put you in touch with individuals who are as geographically close, as possible, to you. If you would like to connect with someone who understands, email us or call toll-free on 1-855-85-SUDEP (78337).

Further information and support is also available from the following agencies:

SUDEP Action, formerly known as Epilepsy Bereaved, is the leading voluntary organisation in the UK and Internationally on SUDEP and other epilepsy-related deaths.

Epilepsy Foundation which has affiliates across the US and whose mission is to stop seizures and SUDEP, find a cure and overcome the challenges created by epilepsy, through efforts including education, advocacy and research to accelerate ideas into therapies.